Charlotte Croft – who was diagnosed with FND earlier this year – shares her honest thoughts and feelings on celebrating Christmas and navigating the festive period with a disability for the first time.
Christmas is a time for cheer, love and celebrations. Sparkly lights, Prosecco flowing and spending time with family. But this year is the first year I will be experiencing an altogether different Christmas, the first with my disability.
I love Christmas. I always get excited and can’t wait to put the tree up and get the games out. I look forward to buying token gifts for those I love and to relaxing for a few days.
However, this year, I am nervous about all those things. Every day, everything is affected by my disability, and most of the time, people have no idea how or why I am affected by this and just how different Christmas will look for me this year, so let’s dive into it.
Christmas shopping in a wheelchair
Firstly, one of the most difficult and frustrating tasks any day of the week for me is shopping. For me, Christmas shopping means trying to weave in and out of the thousands of people who don’t see my wheelchair and decide to step straight in front of me and then huff at me as if it’s my fault.
Or trying to navigate down inaccessible aisles you can’t get down, so you skip them altogether or try as hard as you can to squeeze down them and end up taking out rails of clothes and the whole thing becomes embarrassing.
Christmas decorating with crutches
Another thing I am dreading is decorating the Christmas tree. I can picture it, leaning on my crutch and asking others to reach the parts I can’t reach.
I used to be the person who put the star on the tree because I have long arms that can reach. But not this year, I will be the one sitting on the sidelines, watching from afar, because I just don’t have the capacity for this anymore.
Centre of attention at Christmas gatherings
The thing I am most anxious about is being at loud parties with lots of people. I don’t deal well with being the centre of attention, and this being the first year, I already know so many people will be commenting, “Oh poor you”, or the dreaded question, “How are you coping?”.
I dread being in this situation where I’m just trying to forget about it for a day and enjoy the festivities or trying hard to focus on hiding my tics or thinking, “Please don’t have a seizure”.
Continue to enjoy the festive period
However, with all that being said, I am still looking forward to Christmas, being with family and friends and trying to celebrate.
I really hope I can get through the festive period and feel as well as I can, but in the lead-up to Christmas this year, I will just be hoping and praying that my body plays ball and I can get through it. I’m sure with the wonderful support team I have, I will be able to enjoy the time and rejoice in the good moments rather than focusing on the bad. And hey, with a new year on the horizon, it can only get better, right?
Can you relate to Charlotte’s Christmas experiences? How do you manage the festive period with a disability? Share your thoughts and advice in the comments box, on social media or contact us to share your personal story.